This has been a week of adjustments. Back to reality and real life has been exciting and daunting at the same time. Juggling meds, vitals, cleaning, schooling, running kids has been challenging. It's really nothing different than what we were doing, it is actually less work.
In fact, one of the adjustments is no dialysis. Several times we have been on a errand only to catch ourselves thinking, "We need to get home to do a exchange." so weird. We didn't start feeling that way until we came home. Also, more than once I have caught myself jumping at the phone, I remind myself that we aren't waiting anymore.
There is a bit of fear, that is something we both have to get past. Worry of rejection and this all being taken away. It might not be something we outright say, but it is in the back of our mind. Also, re-learning how to live. Our lives have been on hold for three years, now we can live again. In some ways, we have forgotten how to live freely. It's going to take some time to remember. We need to decompress and move forward, pressing on to the future and enjoying each day. We don't know how long this will last but we need to make the most of every minute.
It has been so nice to be home and be back together as a family. We have been re-arranging cabinets and getting rid of medical supplies. Getting the kids back on track in school, they did a lot while they were gone but there are some areas that need work. I now can fully focus on those areas and spend time getting things going full steam again. We are schooling this summer to do some heavy duty work we put on hold in case the call came.
Marty's blood sugars are so much better. He went down on Predisone this week and immediately his sugars went down. His blood pressures have been low, much lower than before. They did spike a bit today, not sure why and nothing like before. The nausea and vomiting are gone, he is feeling so much better and eating again. He is up to 35 pounds lost so far. We are starting to walk farther each day. He is making progress physically.
We are headed to Stanford on Thursday for our weekly visit. We are excited to go back and show them the progress since he has been home. Anxious to get the labs and see how things are going. I will blog when we get back and let you all know.
